August 2015

“These children often are chronically ill and have not had the opportunity to experience feeling well and participating in everyday childhood activities; therefore, their parents are very willing and generous with their time to help with the research. Without them, we would not be successful in learning more about this disease, so we are incredibly appreciative.”- Judith Kelsen, MD

PEDSnet Awarded $8.6 Million to Support Research Network


PEDSnet, a patient-centered clinical data research network led by The Children’s Hospital of Philadelphia, received $8.6 million in funding to continue its discovery and implementation of new ways to provide the best care and outcomes for children. The three-year grant from the Patient-Centered Outcomes Research …

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Gene Variants Detected in Very Early Onset Inflammatory Bowel Disease


Melding together genomics technology, disease patterns, immunology, and microbiology, physician-scientists at The Children’s Hospital of Philadelphia are finding new and individualized therapies for patients with very early onset inflammatory bowel disease (VEO-IBD), IBD that presents before age 5. IBD is a chronic inflammatory disease of …

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Mitochondrial Disease and Diabetes Good Companions in Research


When people have things in common and cross paths regularly, they often form bonds and become friends. If this were true in the world of biology, then diabetes and mitochondrial disease could become besties. Mitochondria are organelles that sense and control cells’ energy balance. Certain …

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Research, Clinical Care Combine to Improve Childhood Arthritis


When children with multiple swollen joints come to the Center for Childhood Arthritis and Rheumatic Disease for treatment, and then a few weeks later they are back on the field playing sports, their energy is contagious for pediatric rheumatologist Pamela Weiss, MD MSCE. A clinician, …

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Predictors of Recurrent Urinary Tract Infections Identified


Urinary tract infections (UTI) are common bacterial infections that are not only aggravating for youngsters and their parents, but they also can have serious long-term consequences. That is why it is valuable for clinicians to be able to better predict which children are most susceptible …

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Video Aimed to Increase Teens’ Acceptance of HPV Vaccine


About 79 million Americans are currently infected with human papillomavirus (HPV), and 14 million people become newly infected each year. Yet, despite these very real numbers, misconceptions about HPV seem to overshadow attempts to increase vaccination rates to prevent infection. In 2014, coverage estimates for …

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Hospitals Missed Screening Opportunities for Child Abuse


More than 1,500 children die from abuse in the U.S each year, and many more are injured. Hospitals, however, may be missing opportunities to protect these young victims of abuse. A study published in the August issue Pediatrics showed a wide variation in how hospitals …

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EEG Monitoring Helps Find Seizures in Newborns After Cardiac Surgery


It is imperative for clinicians to detect and treat seizures that may occur in newborns with congenital heart disease (CHD) who have cardiac surgery. Seizures are associated with underlying brain injury, greater illness severity, and worse neurodevelopmental outcomes. The problem is that seizures can be …

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Gene Sites Shared Across Multiple Pediatric Autoimmune Diseases


Many autoimmune diseases run in families, and because individual patients often have more than one autoimmune condition, clinicians have long suspected that these disorders have shared genetic predispositions. An international study team led by researchers from The Children’s Hospital of Philadelphia’s Center for Applied Genomics …

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