June 2015

“Appropriately, parents are the keepers of their young children’s medical history. With guidance from the Cancer Survivorship Program and their parents, survivors in their teen years become empowered to handle their own medical issues, and we help them learn to advocate for themselves.”- Jill P. Ginsberg, MD

Experts’ Work Improves Young Cancer Survivors’ Quality of Life


One of the extraordinary achievements of modern medicine is that physicians can cure 85 percent of children diagnosed with cancer. About 380,000 survivors of childhood and adolescent cancer are living in the U.S, and researchers continue to provide better options in chemotherapy, radiation, and surgical …

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Treating Crohn’s Disease’s Effects on Growth, Bone Density


A study recently published in the Journal of Clinical Endicronology & Metabolism shows a drug approved to treat Crohn’s disease, ulcerative colitis, and related conditions leads to “rapid improvements” in bone density and structure. The study, which was conducted by former and current Children’s Hospital …

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International Partnership Leads to Cerebral Palsy Insights


The most common cause of childhood disability in the world, cerebral palsy affects between 1 and 2 infants per thousand. But despite its prevalence, this neurological condition — which can cause a variety of movement issues and other challenges — tends to be understudied, especially …

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Researchers Aim to Find Pathway Interactions in Colorectal Cancers


Colorectal cancer mainly exists in people older than 50, but it also can occur in young adults who have a genetic condition called familial adenomatous polyposis (FAP). Polyps can begin to form inside the intestinal tract during their teen years. If FAP is not diagnosed …

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Web-based Game Teaches Coping Strategies After Traumatic Event


Millions of children will likely experience some kind of unexpected traumatic event, from car crashes to natural disasters to medical emergencies. Many will struggle with psychological challenges during recovery, and parents and physicians may not know how to help them cope emotionally after such frightening …

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PCORI-Funded Project Will Assess ADHD Portal


With the support of a recent $2.1 million award from the Patient-Centered Outcomes Research Institute (PCORI), The Children’s Hospital of Philadelphia’s James Guevara, MD, MPH, will study the comparative effectiveness of an electronic portal vis-à-vis in-person communication for attention-deficit/hyperactivity disorder (ADHD). Set to be conducted …

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Research Needed to Address Unique Needs of Adolescents With HIV


Every day Sarah M. Wood, MD, a fellow in the Craig-Dalsimer Division of Adolescent Medicine at The Children’s Hospital of Philadelphia, is stunned by the resilience and strength of the young people she works with who are living with human immunodeficiency virus (HIV) and the …

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Retinopathy of Prematurity Study Cited as Promising mHealth Example


At a recent U.S. Senate hearing, Francis Collins, MD, PhD, director of the National Institutes of Health, cited a project led by a CHOP researcher when discussing the promise held by mobile health (mHealth) applications. Children’s Hospital’s Graham E. Quinn, MD, MSCE, has been spearheading …

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Study Finds Gender Bias in Growth Hormone Treatment for Height


Researchers from The Children’s Hospital of Philadelphia have found a clear-cut and persistent gender bias in the provision of treatment for idiopathic short stature (ISS) with recombinant human growth hormone treatment. The work, which was published recently in Scientific Reports, shows short boys are three …

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Fear Shouldn’t Drive Policy: CHOP Expert Offers Vaccine Commentary


Noting “vaccine-preventable diseases remain a significant threat to children’s health,” in a recent editorial The Children’s Hospital of Philadelphia’s Kristen A. Feemster, MD, MPH, MSHP, calls for “ongoing vigilance.” Dr. Feemster’s editorial, which was published recently in JAMA Pediatrics, reviews vaccines’ successes while also pointing …

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No Difference in Outcomes for Preterm Infants Enrolled in RCTs


Many families of premature infants quickly become familiar with a powerful research tool called a randomized clinical trial (RCT). Neonatologists may invite them to participate in RCTs, as they investigate ways to help prevent, treat, and manage the myriad complications that can occur when these …

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Sleep Medicine Researcher Receives Prestigious Achievement Award


As a curious 12-year-old on a long cross-country trip, Carole Marcus found a slim book in her family car’s backseat written by William C. Dement, MD, PhD, a pioneering sleep researcher. Little did she know as she began flicking through its intriguing pages that one …

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